Some Resources for Angelman Syndrome MAIN INFO: https://rarediseases.org/rare-diseases/angelman-syndrome/ COMMUNICATION https://www.assistiveware.com/blog/join-angelman-revolution SIBLINGSHIP: https://www.youtube.com/watch?v=y1dIlCd9cQ8 EPILEPSY IN ANGELMAN https://www.epilepsy.com/learn/epilepsy-due-specific-causes/angelman-syndrome
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Innovative research uncovers mechanism behind epilepsy in Angelman syndrome, may lead to future therapies -
https://www.duke-nus.edu.sg/about/media/media-releases/media-releases/innovative-research-uncovers-mechanism-behind-epilepsy-in-angelman-syndrome |
The UK based Angelman Syndrome Support, Education & Research Trust (ASSERT) is creating a series of films to help explain what Angelman Syndrome is, how it occurs and how it effects daily life. This film is the sixth in the series, we hope it helps raise awareness, supports families effected by Angelman Syndrome and also helps all people who wish to learn more about AAC.
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Communication Part One offers an overview of what it might be like to communicate with somebody that has Angelman Syndrome. It briefly covers the various types of communication methods such as PODD books or Proloquo2go. Families give an insight into their experiences and Professionals advise on what to expect moving forward. The film highlights that individuals communicate in various ways and at different levels of interaction. |
Alternative and Augmentative Communication is a very important part of life with Angelman Syndrome. This film, 'Starting AAC', offers an introduction on how to begin using AAC to communicate with somebody that has Angelman Syndrome. It looks into what kind of language should be used and what you might expect to find at the beginning. The professionals in this film offer their knowledge and tips to help prepare families and carers ready for starting to use AAC. |
JOURNAL - REVIEWS
Epilepsy in Angelman syndrome -
https://www.seizure-journal.com/article/S1059-1311(07)00187-2/fulltext
Quantitative Measurement of Communication Ability in Children with Angelman Syndrome -
https://onlinelibrary.wiley.com/doi/full/10.1111/jar.12305
https://www.seizure-journal.com/article/S1059-1311(07)00187-2/fulltext
Quantitative Measurement of Communication Ability in Children with Angelman Syndrome -
https://onlinelibrary.wiley.com/doi/full/10.1111/jar.12305
OTHER RESOURCES
- ANGELMAN SYNDROME FOUNDATION - https://www.angelman.org/
- CANADIAN ANGELMAN SYNDROME SOCIETY - https://www.angelmancanada.org/
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This resource site includes inclusive services for all types of professionals. The reviews are from parents who shared their positive experiences with them. Do note that every individual is unique, and not every service provider is one size fits all. Negative feedback will not be displayed but do contact us if you feel that there are concerns, and we will decide to review for removal on a case-by-case basis. If you have come across any inclusive services that could benefit another family do contact us to place their services for other parents to find. Thank you people :D
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This resource site includes inclusive services for all types of professionals. The reviews are from parents who shared their positive experiences with them. Do note that every individual is unique, and not every service provider is one size fits all. Negative feedback will not be displayed but do contact us if you feel that there are concerns, and we will decide to review for removal on a case-by-case basis. If you have come across any inclusive services that could benefit another family do contact us to place their services for other parents to find. Thank you people :D
Facebook Advocacy:
(Updated events and sharings will be also available at
www.facebook.com/ANeurodiversityRoadOfLoveSg/
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